Today went very well, aside from me not being able to see Cutler that is. First things first, the results of the phish test came back and showed that there is no leukemia cells within his current system. This is great news and the test was run because of the results of the test that determined the amount of cells coming from the different marrows. This was a huge relief for us and excellent news to receive after a few days of frustration.
Positive news number 2, is that Cutler has now gone over 36 hours without digestion issues and they have increased the volume from 20 ml to 22 ml and will increase slightly every 12 hours as long as there are no issues. Dr. Goldman has said that once he can handle 40 ml over a 12 hour period, we can have our baby boy back home. I don’t want to set any timelines, but they are thinking middle to end of next week.
More positive news is that Cutler actually drank an ounce of thickened water from the sippy cup today as well as ate some diced apples! Cutler was even getting upset whenever the cup was taken away from him, so this is a huge step and while he does require a squeeze of the cup from one of us to get the liquids, it is incredible that he is actually drinking from it and more importantly wanting to drink from it.Â
The only negative on the day is that I have a stomach virus of some sort. Last night my fever got up to around 100 and I went to the doctor first thing this morning and was pretty much told there isn’t much to do, but to let it run its course and naturally to stay away from the hospital. Fortunately my fever has been gone since about 9 am and I am feeling much better, so I should hopefully be able to get back up to see Cutler by tomorrow night. The timing sucks as Melanie is out of town, but fortunately my parents came in town and just the right time and so Aunt Pat put in an extra long shift during the day and my mom is sacrificing her back to spend the night for me. I actually think she might be doing it just to get away from dad’s snoring, but we will stick with her selfless sacrifice for now. 🙂
Sorry for no photos of Cutler, but hopefully I can get some up tomorrow.
Team Fricke 
GOD IS GREAT!!
I can almost “hear” the huge sigh of releif in your writing!! This is awesome news!!
We are so HAPPY that Cutler is on his journey home…so does this mean he is in remission??
Let us know if you need anything…we’re just a call away!
Hugs to you 4 from the Carleys!
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Actually he has technically been in remission since his first round of chemo. This means that the 30% of cells coming from his old marrow is not producing leukemia. Yea!
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Great news! Love and miss you guys!
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Wonderful news! Pretty soon he will be eating as well as his big brother.Stay strong! The fight is nearing the end. God is listening to everyone’s prayers.Love and miss you all!
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This is wonderful news and hopefully you will have your baby back home shortly. Tons of prayers your way.
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HOORAY!!!!!!!!!!!!!!!!!!! This is such exciting news! Thank you, God, for all that You have done!!!
Love,
Aunt Linda & John
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Great news, thanks for sharing! Hope dad feels 100% soon, and said a prayer of thanks for those parents and family! Many thoughts for your family!,
Hand in Hand Prayer team at FC
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Can you see my huge smile, Aaron and Melanie? Tremendous news all around. We are so happy for all of you and soon Super Baby will be back home! I LOOOOVVVVVEEEEEE ITTTTT!
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This is wonderful news. So glad Cutler is improving each day. We have so much to thank God for. I know you are all happy to see the light at the end of the tunnel. Keep the positive thoughts. There are many many people who care about all of you.
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