This morning Cutler was switched to yet another formula, one that should require very little digestion and the gastro doctor wanted to keep him at 20ml on the new formula for 24 hours.  So far, so good.  Cutler has not fussed at all and even better has not vomited.  Dr Goldman also started him on some medicine that should stimulate his appetite.  Waiting to see how it works and continuing to work with him on eating solids and we are now almost to the point of abandoning the bottle and working only on the sippy cup.

As for our frustration, the Dr did remind us that the TPN does go through the liver and so there is more stress on the body by sticking with the TPN.  This has helped us accept our decision to go with the feeding tube and we are back to accepting our fate and working with what we have.  No more complaining…until the next day we feel down.  🙂

My mom and dad are back in town, and it couldn’t come at a better time as Melanie is flying out tomorrow and I am starting to come down with yet another cold.  It’s my fault, as Melanie keeps reminding me, since I haven’t been taking my vitamins.  No more reminders for me as I am all over them and even eating a ton of oranges.  

Aunt Pat and mom are having fun hanging at the hospital now and helping out where they can and even knocking a few hours of Barbara’s schedule away from her.  Dad got to spend some time with him this morning as well and he says that Cutler seems a bit confused to hear my voice, but to see the old man.

Mason successfully tested for his first orange strip on his yellow belt in jiu jitsu today and we have some really cute video that I will work on posting tomorrow.

And not because my mom and dad just came into town.  But because we continue to have issues with the feeding tube.  Cutler made it through the night two nights ago and all the way into last evening before vomiting.  The rate is still below 30, well below the target of 60.  Independently, Melanie and I have both been wondering if we made the wrong choice with the feeding tube.  If we had decided to just stick with the TPN we could have had him home by now and instead we are in the same situation we were before, only we have now another hole in our baby boy.  I am sure in the long run this was the right decision, but it is frustrating to see a lack of progress and in fact perhaps a bit of digression.

Haven’t heard from Melanie on how last night went, but will try to get another update shortly.  We are going to express our concerns about the tube to the doctor, so maybe we can figure something out that gets us all home together soon.