And not because my mom and dad just came into town. But because we continue to have issues with the feeding tube. Cutler made it through the night two nights ago and all the way into last evening before vomiting. The rate is still below 30, well below the target of 60. Independently, Melanie and I have both been wondering if we made the wrong choice with the feeding tube. If we had decided to just stick with the TPN we could have had him home by now and instead we are in the same situation we were before, only we have now another hole in our baby boy. I am sure in the long run this was the right decision, but it is frustrating to see a lack of progress and in fact perhaps a bit of digression.
Haven’t heard from Melanie on how last night went, but will try to get another update shortly. We are going to express our concerns about the tube to the doctor, so maybe we can figure something out that gets us all home together soon.
I can hear discouragement and frustration but I know you and Melanie are doing everything your wonderful doctors have suggested. Am sending some verses for you to read again and again.
Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus. Philippians 4:6-8
Trust in the Lord with all your heart,
And lean not on your own understanding;
In all your ways acknowledge Him,
And He shall direct your paths. Proverbs 3:5,6
I hope these will give you peace of mind.
LikeLike
How frustrating this must be! Maybe now that Grandma and Grandpa Fricke are back down there again, he will show off for them and start tolerating his formula better.
Lots of love from Missouri,
Aunt Linda & John
LikeLike