Cutler’s Comforts

This morning was Cutler’s second doctor’s appointment and everything continues to look good.  His platelets were at 115K, which is phenomenal to be producing at such a high level this early in the transplant process.  His RBC is at 9.8 and his WBC his holding strong at 6.9.  Dr Weinthal is extremely pleased with his continued acceptance of the new stem cells as his skin still looks incredible, per Dr Weinthal.  The skin condition is a good sign of GVHD and so to see perfectly clean skin always makes the doctor happy…and mom and dad. 

Cutler’s eating habits, on the other hand, aren’t showing much improvement.  Sometimes it seems like he is really into drinking from the sippy cup, but then he quickly loses interest.  We also continue to feed solids and he usually does a good job of putting them in his mouth, but tends to lack the ability to swallow.  He usually swallows about 25% of what he puts in, but the doctor assures us that he will eat in time.  Until then, he is doing a good job of tolerating the feedings via the pump/tube.  We are currently up to 48 ml/hr for 14 hours and the doctor is happy with this.  We are trying to work our way to 60 for 12 hours, but don’t want to push it too fast.  However, I think we will be there by the weekend.

Ever since we got home Cutler has been extremely fussy.  Much more so than we have ever seen.  Initially it seemed like it might be due to the adjustment of one small room to a multitude of rooms and options for toys. While this does seem to be part of the problem, we have also found that he is teething and so with the application of orajel and some tylenol his happy side is starting to come back slowly but surely.  Despite it all, he is doing a great job of sleeping through the night and providing me comfort with naps on my chest throughout the day.

Cutler’s new best friend to be, Kobi, has arrived in town.  If you don’t remember, Kobi is Melanie’s cousin who recently graduated from Wyoming and has agreed to live was us and watch Cutler for at least the next six months.  So far so good as she seems like a reasonable young lady despite being from the non cajun side of Melanie’s family.  🙂  We are happy to have her here and hopefully Cutler’s recent fussiness won’t cause her to have regrets with making the 1o00 mile drive.