Day 26

Still no white cells and we are now seeing how overly optimistic the thought of him coming home the first week of January was.  That is definitely no longer in our future, unless some miracle happens overnight.  The doctors are trying to mask it the best they can, but you can see that they were expecting to see something by now. 

They do say not to worry, that every baby is different and that we shouldn’t start to worry until we get to day 42 or higher.  Dr Goldman did increase the neupogen to twice a day from once a day in the hopes that it will help the stem cells grow quicker.  Some good things to mention are that Dr Weinthal did see some white cells under the microscope a week ago, so we know there is something.  It is possible that any white cells he is generating are going straight to fighting any potential infections as well as helping him recover from the extreme chemo required for the transplant.

Cutler still is not eating and showing zero interest in the bottle.  I did manage to get him to keep it in his mouth for about 30 seconds, but did not try to drink at all.  In fact, he started to gag and he immediately starts to spit when you put the bottle in front of his mouth just like he would when the medicine would come.  They assure us that it will change when the white cells return.

I know that we have been preaching patience, but sometimes it is extremely difficult to “practice what we preach” and I think it is finally starting to get to us.  However, that being said, we will push on knowing that the white cells will come when they are ready and that Cutler will win this fight.

11 thoughts on “Day 26

  1. Thanks for the update and sharing your heart, in how hard it is to remain patient. We will continue to pray for his WBC to rise and for the process of healing to continue. Many hugs and prayers for mom and dad.
    In Him,
    Hand in Hand Prayer team at FellowshipChurch

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  2. Keep strong and keep the faith! With prayers and positive thoughts great things happen…

    Lord hear our prayers to heal Cutler, to give Aaron and Melanie the strength and patience they need as parents to get through this tough journey. Most of all, we ask you to help Cutler win his cancer fight!

    God is GREAT!
    Hugs to everyone!

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  3. Oh, God, please bring a battalion of those “White Knights” marching in to assist Superbaby Cutler so that he is victorious in his crusade against this villain cancer. Please comfort Cutler and all of Team Fricke during this long battle that they have ALL been so valiantly waging.
    Love, patience and prayers from Missouri,
    Aunt Linda & John

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  4. Good Morning Angels,

    Here is a poem from my favorite author Helen Steiner Rice:

    A Prayer for Patience

    God, teach me to be patient-
    Teach me to go slow-
    Teach me how to “wait on You”
    When my way I do not know…
    Teach me sweet forbearance
    When things do not go right
    So I remained unruffled
    When others grow uptight…
    Teach me how to quiet
    My racing, rising heart
    So I may hear the answer
    You are trying to impart…
    Teach me to LET GO, dear God,
    And pray undisturbed until
    My heart is filled with inner peace
    And I learn to know YOUR WILL!

    Be still, and know that I am God… Psalms 46:10

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  5. Here I am AGAIN,

    Found this – thought it might help from Helen Steiner Rice:

    When you’re troubled and worried and sick at heart
    And your plans are upset and your world falls apart,
    Remember God’s ready and waiting to share
    The burden you find much too heavy to bear-
    So with faith, “LET GO” and LET GOD” lead the way
    Into a brighter and less troubled day.

    Hope these poems help you as much as they help me.

    Love You So Much,

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