Not even Dr Lenarski. Cutler is either extremely inquisitive or just untrustworthy of any doctor or nurse as he will not turn his away when one is in the room. Thus the photo above from this morning. Actually he likes everyone, but does keep a close eye on them, especially when they have a fun stethoscope to play with.
Last night was a bit of a rough night, but not for Cutler. At 3 am, Cutler woke up as happy as a peach and ready to play. Fortunately I was able to get him back to sleep a bit later, but these fun new IV pumps that they have installed keep me up all night with constant alarms going off and unfortunately if I don’t get up and call for the nurse, they would just wake Cutler. However, Cutler did manage to sleep through the alarms until a little after 8am and once again was ready to play.
He has now gone 24 hours without a fever and today is the most energetic I have seen him in quite some time. Dr. Lenarski, the Godfather of Pediatric Transplants (I named him that), says that it could be in part due to the steroids they are giving him, but we can’t keep him on the steroids as it is too much to ask the body to keep processing along with all of the other medicines. The steroids were an effort to help him get over this little hump and then we will see where we go. He also said that we could probably expect to see his fever return as the steroids are slowly withdrawn. As for pain, Cutler is doing quite well. He does still have the constant drip, but we haven’t had to press the button to add more too often. He has started to get purple dots on his face that you may notice the pictures below and this is due to his low platelets level. They are pretty much like a bruise, but should disappear as his platelets start to elevate.
That’s it for now. Tomorrow is Grammy’s first day on the job and we are hoping that she performs to a satisfactory level so that we don’t have to fire yet another grandma from hospital duty. A little secret, my mom actually isn’t have back issues, but was actually sent home by Melanie because she wasn’t cooking dinner enough. Just kidding, it was actually a request by Dr. Ghisoli as he was growing concerned about her tendency to stalk by his house. It was either her go home or a restraining order put in place. Ok, seriously, just kidding, mom is now home afer a long car ride home and has her first appointment to figure out what needs to be done tomorrow at 2pm.
Tomorrow is also a breakfast with Santa for Mason and then I am helping him skip school for a special day trying to get a photo with the mall Santa and then lunch and a movie for the boys. Looking forward to hitting the bars with him afterwards. He is a real ladies man.
Here are a few photos from this morning with Cutler:
This last one is my favorite. All bruised and smiley. I think he has a future as a hockey player.






I am so happy to see that smiling face!!!! We miss him so much! I constantly have people asking me about him! We are still praying for Cutler “Super Baby” at NSLC!!!
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Sorry I missed you yesterday…did you get the gift I dropped off?
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Love his smile!!
God bless the Godfather of Pediatric Transplant and the staff who keep strong for babies like Cutler!
Keep up the great work and continue with the fight Frickes!
Letty
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Enjoyed reading this post, dad. You and Melanie are a good team.. will pray for this appeal process, so frustrating. Hope dad and Mason have a great day together and Santa brings him all his wishes. We are continuing to pray for you all , his caregivers (Grammy, too!) and for Cutlers healing and forever remission. In Him,
Hand in Hand prayer Team at FellowshipChurch
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I have to hurry with my comment before Grandma Boo gets back from the beauty shop and kicks me off her computer——Go, Cutler!!!!
Also, thanks for the updates. It really makes us feel more connected even though we are so many miles away.
Love,
Aunt Linda on Grandma Boo’s Computer
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Prayers continue to come your way from Ohio. We at Tri Village elementary school are very glad to see and hear the good progress. Cutler is such a cutie. We send you strength and peace.
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Aw, what a sweetheart! I love his smiles. Still praying for baby Cutler.
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