Little Dooneret
So I have a very good friend in LA, Jason Muldoon, who had a baby girl born back on June 9th, Samantha Lynn. Samantha was born with a very rare disease called Auto Recessive Polycystic Kidney Disease. So rare in fact, Southern California has had only three cases this year. The disease causes calcified cysts to form on the filtration duct of the kidney, thus not allowing normal functioning of the kidney.
Samantha has been through quite a bit in her short life. When she was born the medical team was providing oxygen and burst one of her lungs. She then had one kidney removed to allow room for the stomach to grow, unfortunately the second kidney took up this space and when it was removed it had grown to one pound (1/9 of her total weight). Samantha had since progressed quite rapidly through her recovery until about two weeks ago when seizures started to occur, but after further inquiry the tests proved that they were actually little strokes. She should fully recover, but the concern is avoiding the next one, which should be possible by closely monitoring the blood pressure.
The good news of this story is that Samantha was supposed to be moved last night out of the NICU and into regular care on “the floor”. If all goes well, Samantha should be able to go home for the first time in four weeks, but Jason and Trisha still have a long road ahead of them having to watch her closely and take on the activities that the hospital has been doing for the past several months. She should be eligible for a kidney transplant once she hits 33 lbs.
I post all of this not to tug at your heart strings for yet another baby, but because Jason has been so generously there for me with his time over my past two weeks and being inspired by so many messages from everyone out there I wanted to ask that you add one more baby to your list of prayers.
If you want updates, and are a facebook member, please add Samantha Lynn Muldoon. They are posting daily updates and photos. Thanks in advance for your support.
Team Fricke 
Thanks for the support my friend.
LikeLike
Little Samantha will also be in our prayers.
LikeLike
We are Cutler’s grandparents. Little Samantha will be in our prayers along with Cutler. We need to keep our faith that God has both of these babies wrapped in his arms and will heal them both.
LikeLike
Praying God will see this family thru every obstacle. How awesome to have friends such as these, who will encourage each other and most importantly..pray for each other and their needs. “Casting the whole of your care [all your anxieties, all your worries, all your concerns, once and for all] on Him…(I Peter 5:7 AMP)”
Praying for little Cutler and Samantha, God’s precious little lambs..
Hand in Hand prayer team, fellowshipchurch
LikeLike
I have just added precious Samantha to my prayers. I thank Jason for being so giving and supportive of my brother even though you are going through such a difficult time.
LikeLike
I am an “Auntie” to lil Sami. Trisha has been a long time friend. I have just read all of Cutler’s blogs….im so glad you mom’s share what you are going through….We will add Baby Cutler into our prayers along with our little flower, Sami.
xoxoxoxoxo Lots of Love to these amazing babies.
LikeLike
Not a problem!!! This preious angel will be added to our daily prayers as well.
LikeLike
Adding another precious little one to our prayers!
LikeLike
Dear Melanie and family,
I have only now mustered the courage to read your family’s blog, having dealt with my now 9 month old twin boys’ very early arrival late last year. Now that they appear to be in the clear (well, they have a few lingering issues of course, but nothing like what Cutler is going through), I wanted to catch up with Cutler and send positive energy and additional prayers his way. Your strength and courage shine in the humor of your entries, but I know it’s not been easy. I’m so impressed with your stamina and dedication – keep it up! You are an inspiration to the rest of the world, and especially parents of young children facing healthy issues. You are telling us that even in our darkest hour, we can be far stronger than we could ever imagine. God bless you all! Love, Christi Albin, Frito-Lay Law Dept.
LikeLike