Daily Archives: September 16, 2009

The Other Half Of The Equation

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Never too early for a shave
Never too early for a shave

In my very first post I mentioned that I wanted to use this blog not only to provide updates on Cutler, but to also use it as a family blog going forward because we have another incredibly handsome young man in the family.  Mason just turned four on August 29th and it was at his doctor’s appointment that we suddenly shifted our medical concerns to Cutler.  Mason is very concerned about his baby brother, but is being supportive in our effort, but especially loves that he now gets to sleep in the same bed with whichever one of us is at home.  The above photo is from this morning where Mason told me he wanted to look just like me.  Apparently he wanted to smell like me as well as his holding up of his arms was while he was requesting the application of deodorant as well.

The Troika

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Larry, Moe, and Curly

Larry, Moe, and Curly

I don’t know where we would be without the three lovely ladies pictured above.  Yes, they had to ask how to turn on the lights in Cutler’s room because they were afraid to “set off alarms” by using the light switch because it was colored red, but without them during this time we would be lost and we can’t say enough…not to mention Mason and Cutler have a special affinity for them. 

Larry is my mother in law Betty, Moe in the middle is my mother Carol, and Curly on the right is my Aunt Pat.  Thank you so much to the three of you for cleaning house, doing the laundry, grocery shopping, making Mason’s lunch, playing with Mason, watching over Cutler and just overall being tremendously loving people.  Melanie and I love you very much and can’t begin to thank you for what you are doing.

Goodbye Congestion…Hello Thumb

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Mmmmmmmm, sweet thumb

Mmmmmmmm, sweet thumb

Ohhhhhh, sweet thumb, where have you been?Last night was a good night and as you can tell from the photo, Cutler has been reunited with his best friend, aside from  Mason that is.  Miraculously, despite the lack of ability to fight off infection, Cutler’s congestion that has been around for over a month now has been gone for the past day and he couldn’t be happier.  He never really was one for a pacifier and survived without the thumb, but is quite happy to have him back in his life.

Last night was fairly uneventful, except that he had to have oxygen added after the late night chemo run as his pulsox was dropping.  Fortunately the doctors decided that an oxygen “blow” was sufficient and so no cannula was required…making Cutler and his nose very happy. This morning he was put back under to perform another spinal tap in order to test the fluid around the spine as well as to apply some more chemo to help kill off any more disease in the spinal fluid.  Still waiting on the results, but Cutler has fully recovered and is doing well as you can see in the other picture below (it’s 2 for 1 picture day)…without the help of oxygen.  Looks like the only time oxygen will be required, for now, is during chemo activities.  Yeah, no oxygen!

Good bye oxygen!

Good bye oxygen!