To the day, it’s been approximately 1096 days or the equivalent (not counting leap year) of three years and a day that Cutler had his bone marrow transplant.  Last night we celebrated by braving an outing to Chuck E Cheese and today we celebrated with a succesful trip to the oncologist for his quarterly appointment.  In true Cutler fashion he fussed for a nanosecond when the needle went into his arm to draw the blood and then he just watched as the blood was drawn.  Cutler is still all clean and we have now shifted to semi-annual visits.  While it is exciting to spread them out, I do miss seeing everyone that we have come to know so well over the years.  For instance today we were visited by Debbie, one of the main nurse administrators at the hospital.  It was so good to see her and you could tell how much she loves Cutler when he gave her a hug it made her, and us, a bit misty eyed.

Naturally any successful visit to an oncologist is brought down a bit when you see those starting their fights.  When we first got there, a little girl named Lucy, was playing in the waiting area with a mask on.  On the way down on the elevator her mom rode with us and I asked her about Lucy.  This poor girl was originally diagnosed with neuroblastoma, which then kicked off an extremely rare auto immune disorder called Opsoclonus-Myoclonus Syndrome.  It is one thing to battle neuroblastoma, but then to add OMS on top of it is a whole other ball game.  It makes us realize that much more how blessed we are that Cutler has come through as well as he has and with as little complications.  Lucy is a sweet and cute little girl.  Please pray for her to one day celebrate a 1096 day celebration such as ours.

Below are a couple of pictures from our visit.  One of Cutler with his favorite teddy bear and a couple of him working away at a tootsie pop and getting as close as he could to the camera to make my effort difficult.

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