Today was Cutler’s doctor appointment and everything went great. Blood work still continues to look good and Cutler is continuing to gain weight. He is now over 22 lbs, so the doctors are still very pleased with his progress. We have cut back on the GVHD meds once again to only once a day now and then next week we are going to see how he does without it at all. Very excited to get him off his last couple of meds.
Cutler is continuing to eat, but right now he is limiting himself to sweet baby foods, yogurt, guacamole, and hot dogs. He will occasionally try other items and is making some progress on swallowing. Still not drinking a lot, unfortunately, but we do have an appointment with the speech therapist on Thursday.
Other than his lack of desire to drink, everything is going wonderfully. We continue to be a pretty busy family running from here to there and then back to here, but I love every minute of it. This past Saturday we had to divide the team where Melanie took him to the Cure Cancer walk at the Texas Motor Speedway, where I hear he got plenty of love from the nurses. Below is a slideshow of some of the pictures Melanie took, including his buddy Lucas.
What wonderful news about Cutler’s continued progress! I am so happy to hear about his appreciation for guacamole and yogurt, especially. However, hot dogs? Are they tofu pups?
Give Cutler a big kiss from Aunt Linda and John!
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This is great! I finally gt to see Mason play ball, and Cutler and Melanie at the gathering. So far I haven’t had the video of Cutler talking, but I want to introduce myself to Kobi, it sounds as if you are a godsend for Cutler as well as the whole family. I am loking forward to a possible visit from my Dallas family. Love U all. Grandma Boo
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