Tomorrow should hopefully be a busy day for the entire team. I start a new job tomorrow, back with Amdocs on site at ATT, Cutler may get his line out, and hopefully Cutler will get to come home. He has continued on without a fever and the doctor is in agreement that we should have the line removed. We won’t know for sure until tomorrow, but if the surgeon can fit us in then Cutler will have the line removed and hopefully be home by bed time. There was initial discussion of inserting a port, but he doctor thinks we should be alright without either and so this is the route we are taking. The only downside is that for future blood draws Cutler will have to endure a finger or heel prick and for his future gamma globin (monthly) or medicine in case of hospitalization he will need to have an IV inserted. But I think in the long run, given how well Cutler has done since transplant, we should be ok with the weekly finger prick to help avoid any future bacterial infection scares caused by the central line. It will also be nice to see if he might work a bit more on his stomach without having the lines in the way and even more important I think we can get him in the pool once it warms up. But I need to find out if this is possible given his gtube. Unfortunately he is not showing much interest in eating at all right now, but hopefully that will change once he gets home and start to resume the family dinners.
Despite the reason we were in the hospital it was nice to spend time with all of the 6th floor staff again. Even better is that we, Cutler specifically, got to spend some time with Lucas. Yesterday Cutler hung out on the pool table with Lucas as they both thoroughly enjoyed rocking the wobbly table and playing with the pool balls. Today we hung out in a library for a bit where both boys played with some balloons and then again at the nurses station for quite some time. I also had a few hours where Cutler wasn’t connected to anything and so we loaded up the wagon and headed off on an adventure throughout the hospital. I think we managed to explore all corners of the many different buildings and it apparently wore him out as he decided to take a long nap on my chest while I got to watch the Masters. The only thing that would have made it better was if it were at home.
Here is a picture of Cutler driving the wagon…
