Cutler is still in the hospital and still having issues keeping down the formula, but having no issues spending time with his big brother. Today we got permission to bring Mason up here and so we had a family pizza night together in our tiny little room. When I first told Mason after church today that he could go in the room to see Cutler I thought I had seen the biggest smile I had ever seen…that is until I saw the smiles on both of them when Mason walked into the room. Cutler lit up like I have never seen before and would not take his eyes or hands off of Mason. Everything Mason did, would make Cutler laugh…even him coughing.
He hasn’t had the best past couple of days as we are constantly trying to increase the dosage of the formula and every time we think we are taking steps forward he ends up vomiting. We need to be at 90ml per hour, I think I originally said 60, but as it turns out I heard wrong. The highest we have been is up to 30 and we are currently running at only 20 to see how he does with a new formula that is supposed to be easier to digest. Based on our issues, it doesn’t look like he will be home tomorrow, but we are hoping for Tuesday as Melanie is flying out on Wednesday for a work trip to New York until Friday, but we will take him coming home any time we can get it.
I am hoping that Mason’s visit may have lifted Cutler’s spirits so that he will start to tolerate everything much better. As you will see in the videos below, even the nurses got a kick out of seeing the two of them together and they all commented on how much of a lift it appeared to give Cutler. It’s amazing how much he looks up to his big brother and how loving and calm Mason is with him in return. Mason was even sad when he was leaving, so I am thinking we may just bring him up here every day after school to help keep Cutler laughing and in good spirits.
Here are a few videos from the visit as well as some photos.






