Day 26

Still no white cells and we are now seeing how overly optimistic the thought of him coming home the first week of January was.  That is definitely no longer in our future, unless some miracle happens overnight.  The doctors are trying to mask it the best they can, but you can see that they were expecting to see something by now. 

They do say not to worry, that every baby is different and that we shouldn’t start to worry until we get to day 42 or higher.  Dr Goldman did increase the neupogen to twice a day from once a day in the hopes that it will help the stem cells grow quicker.  Some good things to mention are that Dr Weinthal did see some white cells under the microscope a week ago, so we know there is something.  It is possible that any white cells he is generating are going straight to fighting any potential infections as well as helping him recover from the extreme chemo required for the transplant.

Cutler still is not eating and showing zero interest in the bottle.  I did manage to get him to keep it in his mouth for about 30 seconds, but did not try to drink at all.  In fact, he started to gag and he immediately starts to spit when you put the bottle in front of his mouth just like he would when the medicine would come.  They assure us that it will change when the white cells return.

I know that we have been preaching patience, but sometimes it is extremely difficult to “practice what we preach” and I think it is finally starting to get to us.  However, that being said, we will push on knowing that the white cells will come when they are ready and that Cutler will win this fight.