Cutler awoke this morning ready to get the day moving fast. He started in a huge fit until I finally realized he might be hungry and he drank 2 ounces for the first time in a few days and actually proceeded to do this another two times before noon.
After finishing his first bottle he proceeded to play a lot at his piano bench. He loves making music and dancing away in his chair. By the way, dancing for him is shaking his head back and forth in the no fashion.
Dr Ghisoli then made an appearance and said that Culter was looking and sounding much better than he did a few days ago which was very good to hear. He did find quite a few ulcers/sores in his mouth and explained that his entire ingestive track would look the same and so now it is more amazing to me that Cutler felt like drinking even an ounce of milk. As a quick side story, grandma was out stalking walking the dog passed Dr Ghisoli’s house and waited for him to appear happened upon him out front. Such a friendly man despite grandma’s stalking that hopefully we can share a few neighborhood beers with once this is all said and done. And who knows, Mason could add another girlfriend to his stable as he has a four-year old girl as well. Below is a picture of our friendly neighborhood oncologist and Cutler from today.
A little later Grandma showed up to relieve me and along with her in the car was Cutler’s swing from home. His reaction was amazing upon first site of the swing being brought in. He literally sat up and started to reach out for it. He was so happy when I put him in it that a smile instantly appeared from beyond the pacifier. I was almost jealous of the reunion compared to the lack of reaction I got yesterday. 🙂
Unfortunately the day was not all warm fuzzies as it looks like Cutler will quite possibly need to have a new central line put in, which does require surgery. For the first time they could not draw blood which caused them to fear that the lines are no longer connected and so after a couple of tries to loosen any potential blockage they had to run some dye through and then via xray they were able to determine that they lines were still attached, but just barely. It was enough to run the final dosage of chemo this evening, but will likely need to be replaced. Because they cannot draw blood via the lines, Cutler will have the joy of being awoken around 4:30 am with a heel prick to draw blood. Fortunately for now he is getting some well needed rest, but it is sounding like it is going to be another long and adventurous night. Will know more about a new line tomorrow.
On the good side, Cutler did get to spend some quality play time with Melanie as well.
Team Fricke 