Time Flies

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Sorry for sitting it out for so long.  The time has really just flown by and it honestly felt like only a day or two since my last post, but then I just checked out the date and it has been quite a bit longer than that.  So here are some quick updates…

First of all, Cutler is doing great.  Aside from vomiting first thing after his first bottle of the day he is back to drinking milk and starting to eat solids again.  He is back to playing almost nonstop and is still flashing his infectious smile.  Amy.  His blood work continues to improve daily and he is scheduled for a bone marrow biopsy and another spinal tap tomorrow morning.  This is to validate that the blood results are correct and to be sure that he is still in remission.  Once those are complete, we should be taking him home for at least two weeks. 

As for the transplant, we still don’t have anything scheduled yet and are still trying to finalize where it will be done.  We believe the hospital has worked out some type of contract with Aetna, but not sure how much out-of-pocket it is going to cost us.  We are hoping that the hospital will work with us and potentially waive the additional cost to us to make this a win win situation.  A win for us in that we get to stay with our doctors and nurses that we completely trust and feel like are a part of our extended family.  A win for the hospital in that they can add another success to their stats and more importantly they can continue to spend time with the Fantastic Fricke’s and their support team.  If we do get to stay here, the thought is that we would start the week of Thanksgiving.  Would be nice to have Cutler at home for a big feast before the fun and games, but we can have many thanksgiving celebrations on any day we desire when this is all complete and behind us.

This weekend has been a fun blur as Aunt Becky flew into town on Friday and we have been running nonstop every since including a visit for Mason to see his favorite baby brother.  Once again, the light that comes on in Cutler’s eyes is amazing.  Unfortunately it wasn’t captured very well in the picture above.  However, Mason did let Cutler pull his hair without any water works.

As for Aunt Becky, Mason did dust her on the scooter just like he did to grandpa and he has also been very good about waking her first thing in the morning and letting me stay in bed.  The two of us also went to the Mavs game last night and had some good brother sister bonding time including me being able to explain to her that the five Michael Jackson dancers connected together by poles were actually just one guy and four dummies, thus the poles.  Then we had some good times spending some time at my favorite watering hole, the Gingerman.  Made this morning a bit tougher to wake up, but the bonding time was well worth it.  Plus she got to wear her fancy new shoes out on the town. 

She also got some great quality time with Cutler and once I find those pictures I will be sure to post after we get settled in at home.