Today was much like yesterday, all sleep and cuddle, except he did wake up for about 40 minutes of play time with dear old dad. His fever continues to spike from normal to the 103 range, but just 30 minutes ago he spiked to 104.5. Fortunately it took only about 40 minutes to get it back down and he is now comfortably sleeping in his non PICU crib at a balmy 99.6 temperature.
That’s right, Cutler has been brought back to the friendly confines of the 6th floor. The doctor’s decided now that his blood pressure has been good for the past two days it would be alright to move back to our home away from home. That is exactly how it felt as we walked back to our penthouse as the nurses and PCAs all welcomed us with cheerful smiles. Poor Nagala, one of our first PCAs, hadn’t seen Cutler since his previous stay and so she had never really seen him “sick” or at least at the level he currently is where he wouldn’t smile and would barely open his eyes.
Tonight I was talking to Angela, one of the night oncology nurses about how great the PICU staff was but it just wasn’t the same and she simply said, “That’s because were family here.” I don’t think anyone could have said it better. If we can’t be at home, then this is where I would want to be where I trust the staff implicitly to watch over and care for our precious baby Cutler.
Talked to Dr Weinthal again about Cutler’s condition and he reassured me that while this is serious, it is exactly what they expected to see and is confident that they are treating it correctly. He also mentioned that the cultures have seen that the strep is no longer growing so we definitely have it stopped. Now it is just a matter of Cutler’s white cells being created and swooping in to clean it out. Once his fever stops spiking, I will feel mor comfortable in upgrading us to Yellow, but for now I think we are hazy shade of orange as we were at least able to move back to the penthouse. Thank you everyone for their continued prayers and support.
Thank you God!! And thank you Aaron for the updates!! Like most, I really do look forward to reading them!
Hope you like your key ring!!! You don’t have to use it everyday, if you don’t want.
Glad wer’re neighbors, glad we’re friends!!!
We keep sending prayers to the one above…I know he is listening!!
Hugs to you and the other 3!!!
Letty
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I am so glad to hear that Cutler has been moved to his “Home Away From Home”. Surely, since he is now seeing more familiar faces and being cared for by his favorite nursing team he will get those white blood cells up and working!
Of course, we all continue to think positive thoughts, thank God for his progress to date, and ask God to speed his recovery and to continue His support to all of Team Fricke.
Love,
Aunt Linda and John
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So happy to here that he was moved to his penthouse.I’m still praying for Cutler everyday.
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That is wonderful news to hear that Cutler is out of PICU! Will continue to keep Cutler and all of you in my prayers.
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So glad to hear that Cutler is back “home”. Any shade of “upgrade” is always better than red! The NC prayer brigade is still praying, and will continue to do so. Every morning at work, we all gather around the computer to check on “our boy” as my office calls him. They have fallen completely under Cutler AND Mason’s spell! We are so greatful for the updates and pictures. Please continue to give him our love and take care of yourselves as well!
Love, Pam
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You are all in our thoughts and prayers. I am sure you know that, Aaron and Melanie. So glad that your precious baby’s condition is improving. How I enjoyed the video of Mason hiding and Cutler laughing that adorable baby laugh. They made me laugh also. Your children are just beautiful! Thanks for the daily update.
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