A Good Night

No more smiles...for the camera

Cutler had a pretty decent night of sleep, which is amazing considering the number of times they come in throughout the night to administer medicine, take blood, shoot chest x-ray, take vitals, and put the darn pulsox monitor back on. This is Cutler’s favorite activity of late, kicking the pulsox monitor off, which sets off the alarm and then wakes me until I either get up and put it back on or the nurse does. I seriously think he is doing it on purpose for entertainment purposes, but if it makes him happy he can kick all night.

This morning he was a bit groggy and we had some distasteful reactions to the chemo, but starting around 9:30 he turned back into the lively and happy Cutler. You should have seen his eyes light up when Melanie came into the room. He really does continue to amaze me with his resiliency. And to further my point on the pulsox monitor, he has kicked it off four times in the five minutes I have tried to sit down and write this.

So the good news is that it looks like Cutler is going to be on the move again. The PICU doctor told us this morning that he is looking good, perhaps even better than yesterday morning and doesn’t see any reason to keep him down here. He explained that yesterday he was fully expecting to have to escalate meds and treatments for his congestion and breathing, but he didn’t have to do a thing and doesn’t expect that, for now, he will have to do anything further so he is releasing us back into the capable hands of the oncology floor. Waiting for the oncologist to provide us the same info and determine if it will be to the transplant floor for constant monitoring or back to our old room. We are hoping for the old room so that we can eat in the room again and so that Mason can see him again. Don’t worry, we will leave a forwarding address with either decision. Until then we will just sit tight and continue to play and hopefully sleep again sometime soon.

6 thoughts on “A Good Night”

Somehow you learn to start to “sleep” through those noises, or take care of all of them yourself….your baby is so adorable….was thinking about you all this morning.

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Melanie—
My prayers are with Cutler and your family as you embark upon this journey. I cannot imagine your exact feelings now but I know you and your husband will need great strength for this journey and so I pray that God’s strenght will carry you when you need a mountain to lean on. I pray that your son will see the wonders of God thru the medical staff hand picked for his journey. Finally, I pray for an increase of faith for your support system to encourage you along the way.

Food for your soul:
Matthew 19:26
Philippians 4:13

Yolanda

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Hooray for the good news you received from the PICU doctor. I am sure I am not the only one who appreciates the great job you are doing of keeping us up to date on Cutler’s journey.
We now have Cutler on the prayer list of our church (Immaculate Conception of Dardenne Prairie) and I am counting on our parishoners to come through and give it all they’ve got!
Love,
Aunt Linda

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Aaron and Melanie
Thanks for keeping us posted through the blog. Love the pictures, how do babies do it, even very sick ones? So glad your mother is there to hold down the fort during such a difficult time.
How are you so thoughtful in your words? I am sure you have learned so much about Leukemia, so much and so fast.
The Noffys’ are all keeping Cutler Superbaby and your family in our hearts, thoughts and prayers. Cutler is on many prayer chains around here, Ohio, Indiana,Michigan and more that I am sure were forwarded.
I love this verse from Jeremiah 31 3-4
” I have loved you with an everlasting love. I have drawn you with loving kindness. I will build you up again and you will be rebuilt.”

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