After one night in the ICU, we are back in our “old” room.  Cutler is doing very well today…smiling and laughing.  Sometimes it’s hard to believe he is as sick as he is.  But we know things will get worse before they get better.

Thank you for all of your kind words of encouragement, thoughts, calls and prayers…we feel the love and prayers of everyone who is cheering on Cutler to beat this awful disease!

Melanie

No more smiles...for the camera

Cutler had a pretty decent night of sleep, which is amazing considering the number of times they come in throughout the night to administer medicine, take blood, shoot chest x-ray, take vitals, and put the darn pulsox monitor back on.  This is Cutler’s favorite activity of late, kicking the pulsox monitor off, which sets off the alarm and then wakes me until I either get up and put it back on or the nurse does.  I seriously think he is doing it on purpose for entertainment purposes, but if it makes him happy he can kick all night.

This morning he was a bit groggy and we had some distasteful reactions to the chemo, but starting around 9:30 he turned back into the lively and happy Cutler.  You should have seen his eyes light up when Melanie came into the room.  He really does continue to amaze me with his resiliency.  And to further my point on the pulsox monitor, he has kicked it off four times in the five minutes I have tried to sit down and write this. 

So the good news is that it looks like Cutler is going to be on the move again.  The PICU doctor told us this morning that he is looking good, perhaps even better than yesterday morning and doesn’t see any reason to keep him down here.  He explained that yesterday he was fully expecting to have to escalate meds and treatments for his congestion and breathing, but he didn’t have to do a thing and doesn’t expect that, for now, he will have to do anything further so he is releasing us back into the capable hands of the oncology floor.  Waiting for the oncologist to provide us the same info and determine if it will be to the transplant floor for constant monitoring or back to our old room.  We are hoping for the old room so that we can eat in the room again and so that Mason can see him again.  Don’t worry, we will leave a forwarding address with either decision.  Until then we will just sit tight and continue to play and hopefully sleep again sometime soon.